Partner meeting in Tallinn 4-5.12.25

Experts from all the partner organizations gathered in Tallinn to discuss and plan the activities and the implementation of the project activities. We had the pleasure of having the expert by experience, Aita Roemus, with us, informing and giving valuable information through the patient perspective about digital primary information and peer support in Estonian.

Mapping primary information practices across wellbeing service counties in Finland and in general in Estonia gave us useful knowledge about the current situation

Movement disorder associaton have collected information through a survey about the received primary information. The results revealed that 39% of the respondents haven´t got the individual primary information from healthcare professionals, and 53% of the people diagnosed with Parkinson’s or parkinson plus disease hadn´t attended the primary information day. A total of 467 people responded to the survey.

In Estonian, the primary information is received mainly through neurologists in university hospitals or central hospitals.

The received primary information mainly includes disease symptoms, use of medications, treatment options, coping with the disease, and self-care (esp. exercise), and these themes are mainly well covered in both countries. However, there seems to be less information given about the meaning of rest and nutrition, rehabilitation, peer support, social protection, and social relationships.

We worked towards the objectives of the project and made a work plan for the expected outputs of the project.

• How do we ensure the participation of target group? 

• How do we ensure that enough discussion happens with the health care personnel? 

• How do we ensure the collaboration and sharing between Finland and Estonia?  

We have started to gather primary information material, planning the improved associations’ websites, producing the material for peer support, and organizing a workshop, all aiming to pilot and finally complete the guidelines for health care professionals about digital primary information and peer support.