Project materials

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Welcome to the DiMod project materials section. In this section you can find useful materials related to the project.

Articles

Kinos, S. & Toivonen, A. (23.11.2025). Onnistunut ensitieto sisältää myös henkistä ja vertaisuuteen perustuvaa tukea sairastuneelle. Turun Sanomat. https://www.ts.fi/a/6829594  

Salonen, A. & Marttila, E. & Mattsson, K. (19.12.2025). Digitaalinen vertaistuki liikehäiriösairauksissa – kokemuksia työpajatyöskentelystä. Talk by Students. https://urn.fi/URN:NBN:fi-fe20251215119704

Liikehäiriösairauksien liitto. (2.1.2026). DiMod-hankkeessa kehitetään ensitietoa liikehäiriösairauksista digitaalisesti. Hermolla, 4/2025, 7. https://www.lukusali.fi/index.html?p=Liikeh%C3%A4iri%C3%B6sairauksien%20liitto&i=fc535ae0-cc65-11f0-9f9f-00155d64030a


Matintupa, I. & Nikkilä, M. & Mattsson, K. (2026). Vertaistukea työikäisenä
Parkinsonin tautiin sairastuneelle ja hänen läheisilleen – vertaistuellinen podcast . Talk by Students. https://urn.fi/URN:NBN:fi-fe2026053158460

Koskenrouta, E. Kuoppamäki, K. & Mattsson K. (2026). Rentoutusjooga omahoidon tukena Parkinsonin tautia sairastavalle. Talk by Students. Rentoutusjooga omahoidon tukena Parkinsonin tautia sairastavalle – Talk by Students

Mattsson, K. (2026) Moni Parkinsonin taudin diagnoosin saanut jää ilman riittävää ensitietoa. Hermolla 02/2026. https://www.lukusali.fi/index.html?p=Liikeh%C3%A4iri%C3%B6sairauksien%20liitto&i=ebf3bc26-5518-11f1-a0d6-00155d64030a

Podcasts and Audio Recordings of Experiences of Living with Parkinson’s Disease

The podcast explores the emotions experienced after a Parkinson’s disease diagnosis, the importance of peer support for both patients and their loved ones, and practical strategies for coping with the disease in everyday life.

The podcast focuses on maintaining a positive outlook and the importance of exercise after being diagnosed with Parkinson’s disease.

The podcast is a question-and-answer episode. The topics discussed by the experts, including a neurologist, a nurse, and a physiotherapist, address primary information needs related to exercise, medication, nutrition, mental adjustment to the illness, working life, self-compassion, access to peer support, and compassionate, person-centred patient care.

The fourth podcast explores how receiving a Parkinson’s disease diagnosis during working age can affect an individual’s life and how people living with the condition and their loved ones can receive support, guidance, and hope for everyday life.

What role do physical activity, rest, and nutrition play in wellbeing? And what has supported mental wellbeing? Listen below as peers share their own experiences related to mental and physical wellbeing

Does the illness affect relationships? When and how should you tell family members, friends, or colleagues about the illness? How does the illness affect working life and everyday life? What kinds of support or services should be explored right from the early stages? Listen below to peers’ experiences related to relationships, work, and support for daily life.

Peers share their thoughts and feelings upon receiving a Parkinson’s disease diagnosis. They reflect on what helped them during that time, what they found challenging, and what they wish they had known when they were first diagnosed. They also discuss whether there were any aspects of living with Parkinson’s disease that surprised them.

Peers share their experiences of what helped them accept their diagnosis, how their daily lives changed, and whether the diagnosis brought anything positive into their lives.

Advice from Peers for People Newly Diagnosed with Parkinson’s Disease

Conversation with Dr Ülle Krikmann and Dr Liis Kadastik-Eerme
https://www.parkinson.ee/?id=podcast